This song is dedicated to my RP support group, my kids
and my dad, who also had RP, about what it is like deal-
ing with retinitis pigmentosa (losing eyesight).
March 21, 2014
Every day I'm losing ground,
One more loss when I'm lookin' around,
Like a needle in a haystack, it just can't be found,
And I'm sinking, I'm sinking down.
But I pray that I can be strong,
And I hope that you hear my song,
I know you feel the same way too,
Just the way I do.
Every night I hope and pray,
Wonder when the stars went away,
And all these colors faded away,
My eyes failing on a cloudy day.
But I pray that I can be strong,
And I hope that you hear my song,
I know you feel the same way too,
Just the way I do.
Lookin' at this gray black sky,
Hopin' that these dreams don't die,
This legacy just makes me want to cry,
But I got to hold my head, hold my head up high.
But I pray that I can be strong...
first verse again (two times)
But I pray that I can be strong...
Leslie,
ReplyDeleteHave you shared this with the RP group? This short song captures the grief we feel but also reaches for the optimism we strive for each day. I could really relate to the line, "Wonder when the stars went away." When I notice a new loss, I always wonder when that happened. RP is so gradual that you don't even notice so it's really spot on. The image of "my eyes failing on a cloudy day" is strong. Another strong few lines are "This legacy just makes me want to cry, / But I got to hold my head, hold my head up high." I love the way you sang those words--all of them, actually. =) Post this on the sight! Because of my hearing loss, it was great to see the words, too. So glad you posted them! I saw the post where you asked if you should write a song. I couldn't believe you did it so fast. Great job! =)
Thanks, Amy. It is true how all these losses happen, and we can't even say exactly when, and then another and another. I did post it on the RP group, and people have really been relating to it. Glad you like it. Much love to you.
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